Background
Methods
Setting
Sampling
Ward | Residents participating/Residents living in the ward* | Residents’ main diagnosis | Weekly frequency of organized activities per ward (total time spent per week) |
---|---|---|---|
A | 8/24 | Geriatric psychiatry | 1x per week (1.5 h) |
B | 2/11 | Geriatric psychiatry | 2x per week (1 h) |
C | 1/27 | Korsakoff’s disease | 1x per week (1 h) |
D | 5/20 | Early onset dementia (early and advanced stages) | 5x per week (3 h) |
E | 0/20 | Parkinson’s disease | 3x per week (4.5 h) |
F | 5/15 | Advanced dementia | 2x per week (1.5 h) |
G | 2/14 | Korsakoff’s disease | 8x per week (7 h) |
H | 2/14 | Korsakoff’s disease | 6x per week (7.5 h) |
Data collection
Resident and staff characteristics
Participatory observations and informal conversations
Semi-structured interviews
Analysis
Reflexivity
Ethics
Results
Participants
Residents’ main diagnosis in the wards | Residents participating | Mean age [range] | Gender (Male %) | |
---|---|---|---|---|
Ward A | Geriatric psychiatric diagnoses* | 8 | 80.1 [73–92] | 33 |
Ward B | Geriatric psychiatry diagnoses* | 2 | 57.5 [53–62] | 100 |
Ward C | Korsakoff’s disease | 1 | 76 | 0 |
Ward D | Early-onset dementia (early and advanced stages) | 5 | 57.2 [50–68] | 80 |
Ward F | Advanced dementia | 5 | 80.6 [75–91] | 40 |
Ward G | Korsakoff’s disease | 2 | 61 | 100 |
Ward H | Korsakoff’s disease | 2 | 65 [68–74] | 100 |
Total | 25 | 68,2 [50–91] | 57 |
Participant * | Age | Gender | Position | Ward | How their position relates to the environment and activities |
---|---|---|---|---|---|
Nursing professionals | |||||
Gabrielle | 51 | Female | Nurse assistant | F | Responsible for meal-time care |
John | 28 | Male | Certified Nursing Assistant | D | Responsible CNA for two residents participating in activities |
Liza | 47 | Female | Certified Nursing Assistant | G | Responsible CNA for two residents participating in the activities |
Rose | 38 | Female | Registered Nurse | F | Delivery and coordination of nursing care and identifying the residents’ preferences |
Activity staff | |||||
Emma | 44 | Female | Activity staff | D | Cares for residents with advanced dementia using the environment |
Jennifer | 24 | Female | Activity staff | F | Cares for residents with advanced dementia using the environment, participates in activities |
Other professions | |||||
Jess | 27 | Female | Social worker | - | Responsible for managing and coordinating the environment and activities with and around animals |
Managers | |||||
Ava | 49 | Female | Ward manager | A, F | Responsible for care delivered in wards |
Monica | 63 | Female | Ward manager | D | Responsible for care delivered in wards’ coordination volunteers and central coordination of activities throughout the nursing home |
Shelly | 59 | Female | Ward manager | G, H | Responsible for care delivered in wards and the creative workshop |
Considering the setting
A description of the residents’ ADL care needs and context
The physical green care environment
Time | Activity |
---|---|
8:30–09:00 | Residents living with early-onset dementia feed the goats in their inside stable and letting them outside to join the deer in grazing. Then residents feed hay to the deer outside, clean the water buckets, and refill them. Residents check for eggs in the chicken coop and collect them, often taking them to their ward for breakfast. |
10:30–12:00 | People living with advanced dementia engage in a ‘Cuddle activity’. They first take a walk to the animals and have a drink there. Residents prepare fresh food for the animals (apples, carrots) and feed them. Some residents engage in ‘farm-like’ activities based on their interests and use the broom to clean the premise. |
13:30–15:00 | Residents with Korsakoff’s disease clean the inside pens for chicken and goats. Exchanging straw, hay and cleaning the floor with water. Carrying the dirty straw outside with a wheelbarrow (ca. 4 wheelbarrows). Cleaning the outside premise, sweeping the deer and goat manure, collecting the dirt in a wheelbarrow, and emptying the wheelbarrow in a container 85 m away from the stables. |
15:00–16:30 | Residents with Korsakoff’s disease care for plants outside the animal premise, or doing construction work (e.g. fences, building hotels for insects) |
16:30–17:00 | Residents living with early-onset dementia bring the goats to their inside stables and feeding them. Checking on all animals before nighttime. |
Themes identified based on thematic data analysis
Theme 1: The (in)visibility of ADL
“They always get up for the animals in the morning […]. I’ve rarely experienced residents not going. Whereas to activities like the carpenter workshop or choir, they often say, ‘No, I’m not coming.’ […]. Of course, the animals also need to eat and that’s also important and I think they have that in the back of their minds, I mean of course, the animals will still get food if they don’t go with them, but I still think it’s a feeling inside and they also just like it.” [John, CNA, l.115–118].
“I just saw these residents coming back from visiting the animals. And when I normally ask her [a resident] something, there’s no response. Now she can indicate to me that she is thirsty after visiting the animals. And then I find it really special that she can indicate to me that she is thirsty.” [Monica, Ward manager, l.287–290].
“My physiotherapist always says how I need to avoid rotating movements because of my hip. This is why I clean the stables like this [resident moves around using small steps].” [Fieldnote extract].
“While sitting on a bench a staff member arrives on a ‘duo-bike’ where she and a female resident can ride the bike next to each other. We engage in small talk on the weather and when I ask what she will be up to, she explains how she took some sandwiches for the resident to eat while watching the animals. According to her, the resident will eat more when looking at the animals. Inside the ward, they struggle to achieve a sufficient food intake for this resident. That’s why they sometimes have lunch outside near the animals.” [Fieldnote extract].
Theme 2: Reciprocal care dynamics: fostering ADL performance through connection and teamwork
“This lady refused all activities and care […] she is very distrustful of everything and everyone and you then have to work towards it very slowly and try to build a bond and little by little I was able to go to the animal shelter. In the beginning, she went along grumbling reluctantly, but from the first moment she has been in there she brightens up and talks to the animals […] the look becomes milder in the face […] and the eyes start to shine, she starts to talk to the animals she starts to pet the animals…[…]. And so I found an entrance to be able to take care of her and shower her. Each time step by step and after showering we went to the animals together and at some point, she started linking that so every time I went to groom her, she asked if we were going to see the deer again.” [Emma, activity staff, l.52–71].
“And I mean I lay on my knees just as much, maybe even worse. It does encourage them to do everything together. That’s super fun though […] And the feeling like you still belong, I think is especially important, because you may suffer from a disease, but about everything that happened in the past, I don’t judge, because that’s not what I’m here for. You just have to be here and now and are responsible for taking care of yourself. Now and then when we take a break, I show a picture of my children or my grandchildren or a crazy movie or a joke from Facebook to them and then we have a good laugh. They love that, because then we are equal, and I am not their boss, because that is sometimes said: ‘Yes that she is the boss,’ and then I say, ‘A dog has a boss, you don’t have a boss.’” [Liza, CNA, l. 264–271].
“You are then going to put them in a certain role anyway. That you indeed say like, ‘Tom, can help me with that?’ You know like that and that works. With men that works! And in that respect, you often have an advantage as a woman here. Sometimes you don’t, sometimes you do. It’s just the way it is.” [Liza, CNA, l.466–468].
“The resident explains how he calls his daughter every morning at 10 a.m. and yesterday he told her that he was going to take care of the animals today. His daughter just really enjoys hearing this he tells proudly. He looks at the ladies [residents] around him and smiles.” [Fieldnote extract].
Theme 3: Seized and missed opportunities for meaningful integration of ADL in the physical green care environment
“A staff member asks a group of six residents with dementia sitting around a table outside the animal shelter who wants to cut an apple for the animals. The residents do not respond. A colleague grabs a cutting board, a kitchen knife, a bowl, and an apple. She puts these things in front of a resident and cuts the apple in half. The resident takes an apple in one hand and the knife in the other and begins to cut off pieces. In the hand holding the knife he also holds the cut-off piece of the apple, which the resident then brings to his mouth. This brings the knife close to his mouth, but the activity looks safe and he enjoys his apple considerably.” [Fieldnote extract].
“Just trying. Just try it. And if the effect is nothing or you notice that it doesn’t seem to be working, then try a spin on it. Because last week it had gone outside with someone. And they didn’t like it at all. Then I went with her for coffee in the restaurant. And she talked so much. Yes, and then I think, look at that! It does depend. I mean, they can’t say what they want themselves. So you also just have to try to figure out what would be the best thing we could do?” [Gabrielle, nurse assistant, l. 80–83].
“After feeding and petting the animals at the animal enclosure, a staff member discusses with her colleagues we can best wash the residents’ hands. She thinks it is more convenient to do this on the ward because people are cold […]. Inside the living room, the other residents are still in the same places as we found them […]. We stay in the middle of the living room and a moment later, a staff member comes with wet wipes to clean the hands of sir. For each resident who joined us, the care worker wipes their hands.” [Fieldnote extract].
Theme 4: Professional fulfillment and ADL task obligation: views from staff and management
“I feel that, more often than not, it [positive feeling of residents] has receded into the background. That’s only very brief moment of happiness. I just call it happiness, because that what it is. It’s very short and when I’m inside, I often notice that the feeling has faded again. But did the residents enjoy it? I think so. And those small, short moments are very important. That’s what you do it for […]. That was so beautiful! Sometimes, in a moment like that, if they’re happy, then I’m happy too. Then I know, I’ve done well and I think it’s also not just effort or difficult at that moment, but you also gain so much from it!” [Gabrielle, nurse assistant].
“I think activity staff is responsible for the bigger activities where we sometimes are scheduled to participate in. I think we are responsible for those little extra moments. That one-on-one moment. It doesn’t even have to be very big activities, but yes, a glass of wine or an eggnog, you know is something already. Or indeed doing the nails for the ladies on the ward, which is just something very small because it might only take five minutes […]. Those are just really those little moments already, which is enough for them and I think that’s often forgotten […]. So I think the care staff are a bit more focused on that and activity staff is really more focused on the bigger things.” [Rose, RN, l.250–258].
“Activity staff are doing this now [activities with animals]. Yes, and I do see them struggling sometimes and they hope that nursing colleagues will pick this up as well. And that just has to do with your team. That’s also what I say: Make your job fun! How much fun is it? Even if you’re a CNA or a registered nurse, you can think I take three residents and I’m going to go to the animals. Come out from behind your computer and also make also fun for yourself to then go with three residents and see them enjoying themselves.” [Monica, ward manager, l.142–150].
“Sometimes I do think, that’s also up to me, that I also said to her [the social worker] you should just join a ward meeting again, to tell about it very briefly, even if it’s for 10 minutes, to get that mindset in fellow workers, huh? That’s very often, we have so much to offer […] and sometimes that’s just forgotten in that day-to-day grind. When reminded, staff members think employees it’s ‘oh yes, yes, of course, I can use this or that again’.” [Monica, ward manager, l.317–321].