Introduction
Background
The study
Aim
Design
Participants and context
Data collection
Data analysis
Ethical considerations
Rigour
Findings
Participant | Age | Gender | Education level completed | Former occupation | Marital status | Number of chronic conditions |
---|---|---|---|---|---|---|
P1 | 82 | Male | Secondary | Fisherman | Married | 4 |
P2 | 78 | Female | None | Homemaker | Married | 5 |
P3 | 70 | Female | Primary | Butcher | Married | 5 |
P4 | 68 | Female | None | Cleaner | Widowed | 4 |
P5 | 65 | Female | None | Homemaker | Married | 3 |
P6 | 82 | Male | Primary | Construction worker | Married | 6 |
P7 | 87 | Female | None | Cleaner | Widowed | 7 |
P8 | 71 | Female | None | Homemaker | Married | 5 |
P9 | 75 | Male | None | Construction worker | Married | 3 |
P10 | 70 | Female | Secondary | Homemaker | Married | 4 |
P11 | 69 | Male | Primary | Factory worker | Married | 4 |
P12 | 82 | Male | None | Fisherman | Single | 5 |
P13 | 69 | Male | None | Farmer | Married | 4 |
P14 | 75 | Female | None | Homemaker | Widowed | 8 |
P15 | 70 | Female | Primary | Supermarket assistant | Married | 3 |
P16 | 88 | Male | None | Construction worker | Married | 4 |
P17 | 85 | Female | Primary | Homemaker | Widowed | 5 |
P18 | 68 | Male | None | Waiter | Married | 7 |
P19 | 72 | Female | Primary | Farmer | Married | 5 |
P20 | 69 | Male | Secondary | Telephone technician | Married | 4 |
P21 | 70 | Female | Primary | Childminder | Widowed | 4 |
P22 | 73 | Male | Primary | Farmer | Married | 5 |
P13 | 78 | Male | Primary | Customs worker | Married | 3 |
P24 | 68 | Female | Secondary | Accountant | Single | 2 |
P25 | 85 | Female | None | Business owner | Married | 6 |
P26 | 68 | Female | University | Lawyer | Widowed | 3 |
P27 | 83 | Female | Primary | Tailor assistant | Married | 4 |
P28 | 75 | Male | University | Engineer | Married | 3 |
P29 | 67 | Male | Secondary | Business owner | Married | 7 |
P30 | 84 | Female | None | Housewife | Married | 4 |
P31 | 91 | Female | None | Cleaner | Married | 2 |
Theme | Subtheme | Units of meaning |
---|---|---|
The empowering experience of a personalised health-promoting intervention. | When becoming aware of one’s own situation promotes self-care. | Recognising risk behaviours, health situation awareness, personal vulnerability, feeling empowered, setting new goals. |
Connecting to learning through meaningful self-care advice. | Physical activity and nutrition, holistic health, symptom management, how treatment works, symptom monitoring, support resources, advance directives, self-care technical procedures, applicable advice, practical education. | |
“It’s not too late”: Incorporating health-promoting self-care behaviours into one’s routine. | Healthier diet, exercising, quitting smoking, reducing alcohol consumption, improving hydration, autonomous medication management, using new-technologies, detecting life-threating complications. | |
The emancipatory effect of going beyond standardised self-care education. | Filling a void left by the public healthcare system. | Professional-centred healthcare system, insufficient consultations, opportunity to talk, companionship, practical health education, answering queries. |
When being heard feels good. | Being heard, feeling the focal point of attention, increased sense of purpose, contributing to nurses’ education, feeling good. | |
Reducing vulnerability through self-care education. | More energetic, feeling stronger, higher self-efficacy, better supported, feeling less anxious, increased social participation, improved overall health, increased sense of independence, feeling more autonomous. |
The empowering experience of a personalised health-promoting intervention
When becoming aware of one’s own situation promotes self-care
“Participating in this [home visiting programme] has helped me; mainly to realise the mistakes I made with my condition and that what I was doing was very dangerous for my health.” (P28).
“I have learnt to be more aware of my body, my conditions, my symptoms, as well as to get to know myself better, to reflect, to think about my life, about what I want to do.” (P3).“This has really helped me to control my conditions, because everything I have learnt makes me more aware of them.” (P9).
“I had never had anyone explain everything the way the student did, and it was very good, but it also showed me that I am no longer a 30 something year-old girl. I am 85 and I am not as strong as I used to be. My joints ache, a simple cold can make me feel very sick for days on end… I really need to be careful”. (P25)
“Well, I feel that I can manage my condition better, I feel like I can have more control over my life in general when I do things that are good for my conditions.” (P5).
“I have decided that I want to get stronger. I was in good shape when I was young, but I stopped working and I got fatter and then everything started to hurt more […] I know the exercises that will help me, and I am going to get stronger again.” (P11).“I am not sure this is going to help at my age, but I am still doing what the student recommended me […] I am old and sick…” (P16).
Connecting to learning through meaningful self-care advice
“I have learnt all sorts of things: how to do Kegel exercises, how to find recipes for cooking the food I like in a healthier way, and I am enjoying that. It keeps me busy.” (P24).
“At my age it is normal to have some problems here and there [participant smiles], but I have learnt what to look for when I feel unwell and to decide whether it is serious.” (P31).
“It has helped me to find out about the support available to me, aside from the healthcare centre, the hospital and nursing homes. There are loads of things I can do that nobody had told me before.” (P28).
“What interested me the most was the advance directives. I didn’t know they existed, and I think they are very important for people who are nearing the end of their lives. I have started the process to sort mine out.” (P31).“I am afraid of having a will, I didn’t know about it. I don’t like it. If you go into a coma and you want to die, you write it down and they don’t do anything… you will be dead…” (P18).
“It was easy to follow the advice she gave me (the student nurse) because she never asked me to do big things. We focused on one or two things every week.” (P17).
“It’s not too late”: incorporating health-promoting self-care behaviours into one’s routine
“It’s not too late. That’s the most important lesson I’ve learnt. She has motivated me to exercise, which I do every day, and it’s like I feel better in general.” (P14).“If the student hadn’t come, I would still smoke a packet or a packet and a bit [a day] and now I smoke half a packet.” (P4).
“I didn’t really know what all the different medicines were for, and I used to take them at any time of the day, but now I know how to organise my medicines better with a pill box and alarms on my mobile phone.” (P29).
“I have downloaded so many apps for my smartphone… I am constantly looking for new recipes, to check my progress, to see how much water I have drunk and all those things because it keeps me entertained as well.” (P28).
“I have learnt many things, (…), what I must do when something happens to me like in the case of stroke, smiling [look in the mirror and smile], raising my arm… I didn’t know about these things before, and they helped me to identify it when it happened to me, and I went to hospital straight away”. (P20)
The emancipatory effect of going beyond standardised self-care education
Filling a void left by the public healthcare system
“At the healthcare centre they just tell me “you have this, so take this and that, at such and such a time.” Here they explained things to me calmly, in more depth and in such a clear way that it was perfectly understood.” (P27).
“It has been good for me to spend more time with someone, to talk for longer and to share my thoughts and talk about my concerns calmly. I never used to talk about these issues and it’s been great having these sessions every week.” (P4).“I wish they had left her [the student nurse] longer and that it wasn’t over, because I spend the whole week waiting for her to come because I have felt so relieved lately, and I will miss her company.” (P15).
“I noticed on each home visit that he [the student nurse] put a lot of effort into it and it was really splendid.” (P27).
“I liked it a lot because I asked a lot of questions, and the student answered me very calmly in a way I understood.” (P27).
When being heard feels good
“She [the nursing student] was so warm the whole time. She was very patient, she listened to my concerns… I felt very good because I was comfortable with her.” (P30).
“I would repeat the experience not only for myself but also for the students. I like helping them gain experience.” (P15).
“And thank you to the professors who had the idea to do this because it gave us the opportunity to show future nurses what problems older people have so they know how to look after us when they finish their studies. (P22)
Reducing vulnerability through self-care education
“I feel stronger and much better and now I do things I didn’t used to do, like help in the kitchen or in the garden.” (P3).
“I feel more confident because I have learnt to do things that I didn’t do before, and above all because it has helped me to acquire skills and adapt activities that I was doing incorrectly.” (P31).
“I didn’t know they offered help in the Red Cross for example. I feel that people care about older people like us and that it is nice because I can now call different places and they will help me if I need it.” (P18).
“For me it is a bit too much, to be honest [enrolling in activities for older adults]. I like being at home doing my own things […] I’ve always been at home looking after my husband, my children, my house tasks…” (P14).
“I don’t think about silly things anymore. It has helped me to encourage myself to go for a walk and clear my head. And even if I don’t feel like it, I force myself to talk and socialise with my friends.” (P19).
“It’s incredible. I don’t know why but I feel much better… I have got less reflux, I feel lighter and I feel healthier.” (P22).
“At first I thought it [the home visits] wouldn’t be important, but when I stopped to think about it and analyse everything, I see that everything the student explained to me is useful and it helps me to do things on my own. I feel more independent.” (P9).“I have learnt a lot but the most important thing for me is that I feel she [the nursing student] has helped me to realise that I can make my own decisions. Yes, I am going to listen to my family and the doctors but if I don’t want to do something, I don’t want to… It’s my decision.” (P27).